There’s a world of products and information out there, and the UCCEDD develops and shares it to promote health and quality of life for children and adults with intellectual and developmental disabilities and their families. The UCCEDD also shares information developed by our network partners. Here are quick links to the information you need. The UCCEDD works on different resources and products to share information with the public. We also share information from our partners.
We’ve put together a robust list of resources to help guide you through the pandemic.
COVID-19 Information for People with Disabilities
The UCCEDD wants to provide as much helpful information as possible during this COVID-19 Pandemic. Below are listed websites and other electronic resources relating to COVID-19. If you have any questions, please contact us, UCUCEDD@cchmc.org
**Resources in purple developed by UCCEDD/DDBP/CCHMC**
–Butler County BDD, Questions? reach out to your SSA or call our main number at (513) 785-2800.
–Clermont County Public Health Website: ccphohio.org
The Kaiser Family Foundation and UnidosUS: THE CONVERSATION/ LA CONVERSACION Campaign, addresses information needs about the COVID-19 vaccines in the Hispanic/Latino community with videos featuring doctors, nurses, and promotoras (community health care workers) in English and Spanish. THE CONVERSATION/ LA CONVERSACIÓN is live hereand on YouTubewith over 70 videos and an accompanying toolkit to share THE CONVERSATION in your community.
Ohio Statewide Family Engagement Center – For Families – Remote Learning & Pandemic Resources
–U.S. Department of Education Office for Civil Rights – Webinar on website accessibility during the COVID-19 outbreak.
–U.S. Department of Education – Provides COVID-19 information and resources for schools and school personnel.
–Disability Rights Ohio – Compensatory Education and ESY Discussions After COVID-19
–211 – Provides assistance in finding food, paying house bills, accessing free childcare, or other essential services.
–Government Loans – Provides information on government loans and how to apply and eligibility requirements.
–Grants.gov – Website for federal agencies to post discretionary funding opportunities and for grantees to find and apply to them.
–U.S. Small Business Administration – Provides federal disaster loans for businesses, private nonprofits, homeowners, and renters.
–RestoreYourEconomy.org– Provides resources and information for stakeholders rebuilding local economies after an economic disruption.
Charting the LifeCourse™ tools are designed to support families, with all their complexity and diversity, in ways to maximize their capacity, strengths and unique abilities so they can best support, nurture, and facilitate the achievement of self-determination, interdependence, productivity, integration and inclusion in all facets of community life for their family members.
– Early Intervention
link to Early Intervention page under projects and programs
For people with disabilities and their caregivers, an exploration into best practices surrounding disaster preparation.
Family support activities, workshops, and trainings on topics of importance to families of children and adults with disabilities.
An online care notebook designed to help families organize medical and school records in one convenient, online resource.
–Health & Wellness
We’re empowering people with disabilities to lead active, healthy lives. Additionally, we have a convenient Health & Well-Being brochure outlining beneficial workshops.
–Interactive Maps of Service Providers in the Cincinnati, OH Region
Developer notes: pull content from this existing page: https://www.ucucedd.org/interactive-maps/
Cincinnati LEND’s mission is to improve the health of infants, children and adolescents with, or at risk for, neurodevelopmental and related disabilities including autism spectrum disorders (ASDs).
Transition Bootcamp is a conference held bi-annually for parents/caregivers, youth with disabilities, educators and other professionals interested in transition from high school to adult life. do we want this here?
GENERAL INFORMATION & GUIDANCE
- Coronavirus Disease 2019 (COVID-19) | coronavirus.gov
- Cincinnati Children’s Hospital General Coronavirus Information for Families
- Georgia Tech Center for Inclusive Design and Innovation – COVID-19 Accessible Resources
- Institute for Patient and Family Centered Care – Family Presence During a Pandemic: Guidance for Decision-Making
- CDC– COVID-19 information and resources from the Centers for Disease Control and Prevention.
- CDC – Information specifically for people with developmental and behavioral disorders
- Understanding the coronavirus and how to stay as healthy as possible
- The Center for START Services– COVID-19 information and resources from leaders on mental health and intellectual and developmental disabilities.
- The American Red Cross– COVID-19 Grief Support Resources
- Federal Emergency Management Agency (FEMA)– Provides information on FEMA’s COVID-19 response.
- Ready.gov– Provides information and guidelines regarding a pandemic, as well as COVID-19 specific information.
- U.S. Food and Drug Administration– Food safety and COVID-19
- U.S. Government Response to Coronavirus, COVID-19– Provides information on the U.S. Government response to the pandemic.
- United Nations– Provides COVID-19 information, updates, and resources.
- World Health Organization– Provides COVID-19 updates, information, and resources.
& COMMUNICATION TOOLS
- American Sign Language (ASL) videos
- Coronavirus Fact Sheet– Provides information on COVID-19 and is available in 13 languages.
- Ohio Coalition for the Education of Children with Disabilities– The Ohio Latino Affairs Commission has created a robust website with bilingual coronavirus resources
- CCHMC– steps to help ease kids’ fears and anxieties about COVID-19
- Coronavirus- A Book for Children
- Early Childhood Technical Assistance Center– tele-intervention and distance learning
- Story on wearing masks in public during COVID-19
- How to Talk to Kids about Grief, Loss, and Change…
- Social Distancing Social Narrative
- How Do I Get Tested for COVID-19?
MEDICAL CARE & HEALTH
ACROSS THE LIFESPAN
- Administration for Community Living – Information older adults and people with disabilities need to know about COVID-19.
- Complex Child– Ten COVID-19 Preparations for medically complex families.
- Centers for Medicare and Medicaid Services
- Department of Health and Human Services– COVID-19 State and Local Pandemic Planning Checklist.
- The Ohio Department of Health
- American Heart Association– 25 ways to get moving at home
- Centers for Medicare & Medicaid Services– Visit the CMS Newsroom to find information and press releases about COVID-19.
- Public Health Foundation– trainphf.org/…/Coronavirus_Disease_2019_COVID_19_Training.aspxing on COVID-19 and personal protective equipment
- Occupational Safety and Health Administration (OSHA)– Provides COVID-19 information and resources.
- Public Health Communications Collaborative– FAQ on Answers to Tough Questions about COVID-19 and Public Health
CARETAKING & SUPPORTIVE STRATEGIES
- Autism Focused Intervention Resources & Modules – Toolkit with information and resources on supporting individuals with autism through uncertain times.
- National Association of School Psychologists– Health Crisis Resources: COVID-19 information and resources available for teachers and parents.
- Addressing Difficult Behaviors at Home
- American Psychological Association– Advice for caregivers of children with disabilities in the era of COVID-19
- Childcare Aware– News and resources for childcare professionals, families and policymakers
- Taking Charge of Your Child’s Care Plan Go Bag
- Smart911– Plan ahead for any emergency. You can sign up specifically for Coronavirus alerts (may not be available in all areas).
FREQUENTLY ASKED QUESTIONS
Find a Vaccine (from the U.S. Department of Health and Human Services)
- Visit vaccines.gov(English) or vacunas.gov (Spanish) to search and find a vaccine near you.
- Text GETVAX (438829) for English or VACUNA (822862) for Spanish to receive three vaccine sites on your phone within seconds.
- Call the National COVID-19 Vaccination Assistance Hotline at 1-800-232-0233 for those who prefer to get information via phone call. The call center can assist in 150+ languages and features a TTY line (1-888-720-7489).