Implementation of Education and Advocacy Resources for Head Start Teachers,
Staff, and Parents
Authors:
LCDR Nicoletta Frankenstein, MD, MS, Taryn Booker, Julie Schenke, M.Ed, Shannon Clarke, BA, Karen Harpster, PhD, OTR\L, Karen Burkett, PhD, RN, PPCNP-BC
Parent-to-Parent Networks:
Systems that Optimally Support Parents
of Deaf and Hard-of-Hearing Children
Authors:
Maria Matacia, Samantha Redmond, Katelyn Wargel, Lisa Hunter, PhD
Evaluating computerized assessment of cognition in Down syndrome with caregiver administration
Authors:
Elodie Betances, MD ABP, Kelly Farrell, OTR/L, Alexandra R. Melchiorre, PsyM, SEBM
Project Leader:
Emily K. Schworer, PhD
Access to Inclusion: Incorporating Family-Centered Beliefs in the Community
Authors:
Donna Brinkman, Angel Ehrenschwender, BS, Carolyn Matthews, PsyM, Kimberly Rolf, PT, DPT, Meagan Scott, MEd, Kara Ayers, PhD, & Jen Smith, PsyD, BCBA-D
Families’ experiences with the path to an autism diagnosis
Authors:
Kelsey Cappel, B.S., Abby Genco, M.D., James Lynch, M.A., Resha Young, B.A., Allison Fisher, M.A., Steph Weber, PsyD, MPH
Timothy Freeman, MD, Center for Intellectual and Developmental Disabilities
Authors:
Patricia Bacchus, Ph.D., Christy Gregg, CTRS, Jason Harris, MS, Andrea Jaramillo, DO, Amie Duncan, Ph.D., & Anne Tapia, LISW
Survey of Behavior across Sex and Lifespan in Individuals with Rubinstein-Taybi Syndrome
Authors:
Amber Leston, BS; Dima Qu’D, MS; Lauren Schmitt, Ph.D.; Diana S. Brightman Ph.D, MS; Ilka Riddle Ph.D; Brittany Simpson, MD
Genetic and clinical predictors of hearing loss among patients with CHARGE syndrome: A retrospective chart review
Authors:
Courtney L. Hannum, BS1,2, Brittany N. Simpson, MD1,2, Carrie L. Atzinger, CGC1,2, Jareen K. Meinzen-Derr, PhD3, Lucy A. Marcheschi, BSN4, Daniel I. Choo, MD5, Lauren Buck, MD5, Margaret L. Kettler, AuD6
Research from the 2020-2021 LEND Cohort
The explicit attitudes of genetic counselors towards individuals with disabilities
The Efficacy of Auditory Processing Disorder (APD) Interventions: Parent and Provider Perceptions
ACCESS TO INCLUSION: Developing Professional Standards for Community Settings
Neonatal Abstinence Syndrome Education Project SCOPE: Supporting Children of the Opioid Epidemic
Behavior Inventory for Down Syndrome (BIDS)
The Gendered Pay Gap in Genetic Counseling