UCCEDD facilitates and leads a number of family support activities, workshops, and trainings on topics of importance to families of children and adults with disabilities. Health, education, and service systems can be extremely challenging for families to navigate. Below you’ll find more information on how UCCEDD staff identify these challenges and provide resources to families and information to professionals.
What I do: Offer support to individuals with intellectual and developmental disabilities (I/DD) and their family members in managing and understanding state and local systems, including medical, educational and community systems; provide community trainings for caregivers and professionals on advocacy and navigating service systems; provide 1:1 short-term support via phone and email
Areas of expertise: School advocacy (IEPs/504 plans), community resources, transition support, support coordination, Rubinstein-Taybi Syndrome support, housing, transportation, legal issues, Charting the LifeCourse trainer, Ohio LifeCourse Ambassador
Population served: Lifespan
Contact Information: 513-636-4723, firstname.lastname@example.org
Marion Cosgrove Rauch, Family Information and Resource Specialist
What I do: Provide 1:1 family support via phone, email, in-person meetings and community trainings on healthcare related topics
Areas of expertise: Family support, navigating healthcare, health insurance, community resources
Population served: Individuals with special health care needs ages 0-26 and their families
Regional Transportation Workgroup in Southeast Ohio
This workgroup strives to improve accessible transportation options in the Southeast Ohio area. Family Support Coordinator, Celia Schloemer, along with other members of this workgroup advocate for accessible taxis in Cincinnati, improved coordination of transportation resources, and finding creative solutions to unmet transportation needs. For more information about this workgroup or to find out how to join, contact Celia Schloemer at email@example.com or (513) 636-4723.
Family caregivers identify respite, or short-term breaks from caregiving responsibilities, as an important form of family support. UCCEDD has created an in-depth online resource to identify types of respite, how to pay for respite, types of providers, and respite resources. A brochure is also available.